bug at morgue

Well, I saw the thing comin' out of the sky
It had the one long probe, compound eyee
I commenced to shakin' and I said "ooh-eee"
Looks like a Belostomatidaeeee

It was a one-eyed, one-horned, flyin' purple people eater
(One-eyed, one-horned, flyin' purple people eater)
A one-eyed, one-horned, flyin' purple people eater
Sure looks strange to me (one eye?)
--(Kindly forgive my manipulation of the lyric sample by Sheb Wooley)

And yes, these most painful monsters of our wetlands, from O Canada above, to the fruited plains below, and Good Morning Vietnam oh so far away, and never mind Amazonia, will evoke correctly appropriate fear from people. They are the stuff of nightmares, says Indonesian journalist, Natasha Ishak, and is why they are also called the toe-biter.  Just don’t kill them in reaction, for they are important as apex invertebrate predators within their respective ecosystems, and the Aztec saw them as a delicious food source.  More on that in a bit.

But, if you wish, be afraid... be very very afraid, as all hallows eve approaches, and you wonder, in the warmer climes, if you and your honey should step into the water. Perhaps in your mind, you are already hearing the slowly creeping, baarraoomph, mounting music from Jaws.  For these bugs, of about 150 species that range in size from 0.9 cm images(0.35 inches) to over 12 cm (5 inches), come with exoskeletal equipment in their mouthparts, which, with their raptorial forelegs, can grab your finger if you hold them wrong, and instantly draw it into a really creepy, hypodermic needle-sharp proboscis that normally stays folded under its head. “After [that] violent stab, giant water bugs inject a powerful digestive saliva into their prey”, or, as in my case, the soft flesh right between two fingers. That’s what happened to me, when canoeing the Nashua River in Massachusetts while sampling invertebrate biomass with a net, as an environmental science student in 1975. And I should have known, because it was jerking it’s head plate against it’s thoracic wing plate, somewhat like a rattle snake warns before defensively striking.  They can also play dead, as a defensive reflex, or just waiting for something that can be up to 50 times bigger than itself to come by and grab. They like frogs and fish, just sucking in their juices with that proboscis which first injects a toxic, enzyme rich saliva brew that stuns its prey (and makes you scream) and then liquefies its meat and organs like a smoothie in a bag, often while still alive.  

Take a look at the creepiest, most dramatic video of insect behavior I have ever seen (and I’ve seen many), embedded within this Sun article. By right-clicking on this image-capture from the video, you can open it in a new tab so as to not loose this page.

bug video image capture

“The bug then sucks the liquefied guts through its rostrum like a straw. Using this method, the giant water bug is able to capture and eat animals up to fifty times its own size”, though this one doesn't qualify.  You'll have to see the video to experience something close to it.

But for the sake of the planet, you might want to consider what some indigenous Americans, and so many other current cultures around the world, do with these bugs. They are a rich and environment-sustaining source of protein.  Below this article, among many, you will find a well-produced Vietnamese cooking video, which shows how to make delicious meals with them.  For example the “Aztecs would coat [them] with corn before eating, [and it] is a major food resource in Mexico. giant water bug BHowever, pollution and the drying up of wetlands now threaten harvesting. Owing to their granular appearance, giant water bugs’ eggs, known as water amaranth, are also very popular and their taste is said to be similar to caviar. In France, giant water bugs are sold in sachets in shops specialising in the sale of edible insects. They are sold cooked, without wings or legs. Rich in proteins, calcium and iron, giant water bugs are eaten as an appetiser or in a salad.” --Alimentarium  

The bite of most giant water bug species is considered to be the most painful of all insect bites in the world. But you won't need to dial 911. The saliva enzymes are not dangerous to you, except perhaps through an allergic reaction. You'll get over it, but will never forget it... unless you have a heart attack, since then you might not be able to reach for your smartphone.

They're all over the US, in ponds and marshes, but a Madagascar species can be almost 3 times as big as the largest ones commonly found in America.

Giant water bug Belostomatidae Vohimana reserve Madagascar 13569458513

Now that I've made you paranoid, statistically and due to these bugs desire not to tangle with humans, don't worry about them too much as you enjoy your swim or barefoot walk on Golden Pond by the weedy shore. How many people do you know who’ve actually been bitten by one? Through the water they’ll sense the vibration of your approach, have excellent eyesight, and dash away before you see them... well, unless they are playing dead and you step on one. depositphotos 21686593 stock illustration smiley vector illustration monster

You will sometimes see them flying very noisily around an outdoor light bulb.

The US National Park Service does actually put out a warning about them on Facebook, like they do about grizzlies. I am laughing outloud as I write these final sentences from Copenhagen. Please enjoy the videos below, as you wait for those who spookily are not coming to trick or treat you because they are wise about the pandemic

Summing it all up, though the giant water bug is not quite the scariest insect in the world – that would probably belong to giant dobsonflythis one from China, a harmless dobsonfly species – they deliver perhaps the most painful bite of the insect world and can dramatically put down animals much much bigger than themselves, making them a critically important apex predator for the aquatic ecosystems they occupy.  Rice paddies produce more successful crops with Belostomatidae around to help control pests. Cultivating and eating them (and a whole host of insects easier to harvest) in an ecologically friendly way provides an excellent and sustainable source of protein to titillate your gastronomical curiosities.  By the way, the jaws on that beast above have more to do with sex than eating.

Oh, about sex, ”Giant water bugs are dads par excellence. After these insects mate, the female of some species of the bug cements her eggs to the male's back and then hits the road, leaving the dad to parent alone. For upwards of two weeks, the male diligently cleans and aerates the eggs, fiercely defending them from a host of predators and other dangers until the babies hatch. One study found that female giant water bugs prefer males already carrying eggs on their back — meaning that evidence of skill in paternal care is rewarded by female sexual selection.” – Center for Biological Diversity

WTF is crawling up your neck? 

*NOTE: a) Article title and image lyric sample credit to Sheb Wooley. b) Header/subtitle credit to Scientific American

SOME INTERESTING VIDEOS AND LINKS: 

Good 1-1/2 min video, HD closeup of how it attacks a fish, disables it, and then sucks in the juices, and with really scary music

***

Up close and personal, overdramatized, for why it's also called the Toe Biter

***

Birth of the bugs on daddy monster, 1st stage of metamorphosis into eventual adulthood.  Pretty cool science

***

Sucking in liquifying organs in frog in wild, while it’s still alive (1-1/2 minutes)

***

Man eating a fried one at a Cambodian food market.  Be aware that it is this sort of open and likely unregulated market which often do more harm to the enviroment than good, as well as the potential for mutations of pathogens that can cause pandemics

***

Cooking Technique: Making Spicy Giant Water Bug Paste in My Village - Giant Water Bug Recipe

***

Observations of Belostomatidae behavior from a field station

Five fun facts about them 

Dragonfly Woman shares her dissertation on the monster's mating behavior

Blog on the North American species (from Canada

danmark with permission from Adobe

During the primaries leading up to the dysfunctional 2016 election, Bernie Sanders often lauded the Danish welfare system. Compared to anything found in the United States, Great Britain, and Canada for example, he was, and is, on the money. But according to Humanity in Action Denmark, the socioeconomic trend from the Danish government in recent years has engendered an increase in stress factors that lead to tangible human suffering due to the growing chasm between the wealthy and the very poor: “Until prevailing social mores and public discourse openly acknowledge the new state of the ’welfare state’, there is the threat that an increasing number of poor and marginalized people in Denmark will be neglected.” This can be seen in the long queueing for surgeries and cancer treatment, waiting too long for an operation, and patients have died or lost limbs through unnecessary amputations, and nurses are frustrated by wages not keeping up with inflation and the private sector. Despite those issue, which are also prevalent throughout the world unless you’re wealthy, The Social Progress Index in 2017, ranked Denmark as number one in the world. Denmark also ranks number five in the world in its social welfare spending per person "as...percentage of GDP [gross domestic product]". Sanders' argument is even corroborated from a capitalistic point of view, as is briefly discussed at the end of this article.

But let’s look elsewhere from the free-, or not free-market myth many have of what’s fact and what's false in that particular social-democratic economic dialogue.  Also, in reading this critique of a specific, science-driven aspect of the Danish system of public heatlh care, which must occur, keep in mind that in the United States, tens of millions are perhaps one paycheck away, one illness or accident away, from becoming homeless, and in too many cases, even criminalized, for not having the resources to manage any sort of traumatic issue in their lives.

Just like the often politically employed myth of a frog letting itself slowly boil to death if the temperature is slowly brought up to that cruel and lethal point, there are numerous myths in it. Myths from which everyone from sea to shining sea, and across the big pond can, and should, learn from.

Let’s examine a particular part of the Danish welfare system very few have looked at. And we begin with the film from 1975, which earned Jack Nicholson his first Oscar as Best Actor, a few years after being nominated for Best Supporting Actor, but failing to get it, for the 1970 classic, Easy Rider; not that One Flew Over the Cuckoo's Nest(min. 5:22) wasn’t also a cinematic masterpiece. More than that, according to award winning psychiatrist, H. Steven Moffic, MD, the film, based on the 1962 book by the same name, “...written by Ken Kesey, who had worked in a VA Hospital's psychiatric unit...”, “We [USA] Are Still Flying Over the Cuckoo’s Nest” Vol 31 No 7, July, 2014, peer-reviewed, Psychiatric Times.

But what about Denmark? And lobotomies, as a first instance of the Kingdom's nest. Much more comes beyond that procedure, but for now, let’s explore a bit more about this part of the nest.

Has this tiny nation of 5.8 million, plus its extended, highly romanticized and somewhat PR-fabricated former Viking empire, still within the Kingdom of Denmark -- Greenland and the Faeroe Islands – been flying, or still flying, over the cuckoo's nest without much attention being paid to the underlying problem?

lobotomy inventor Moniz 1
António Caetano de Abreu Freire Egas Moniz

Lobotomy’s inventor, the Portuguese neurologist Egas Moniz, received the Nobel Prize in Medicine for his pains in 1949. Major medical centers in the United States—Harvard, Yale, Columbia, the University of Pennsylvania—regularly performed variations on the basic operation well into the 1950s...

“It has become fashionable in recent years among some medical historians to argue that the operation was not the medical horror story that popular culture portrays it as being. These scholars suggest that, when considered within the context of the times, lobotomy was perhaps a defensible response to massively overcrowded mental hospitals and the therapeutic impotence of the psychiatry of the time. That is not my view, and Luke Dittrich’s book Patient H.M.: A Story of Memory, Madness and Family Secrets (2017) adds to evidence from elsewhere that Scoville (like Freeman) was a moral monster—ambitious, driven, self-centered, and willing to inflict grave and irreversible damage on his patients in his search for fame. He certainly had no time for the Hippocratic injunction: ‘First, do no harm.’...

Excerpted from Psychiatry and Its Discontents by Andrew Scull, published by the University of California Press. © 2019 by the Regents of the University of California.

In Danish, it’s called det hvide snit, which literally translates to the white cut.

If you didn’t dare click on the Andrew Scull link above and fully absorb the facts, well, he is a highly respected critical thinker who is a “...Distinguished Research Professor of Sociology and Science Studies at the University of California, San Diego [UCSD]. He is past president of the Society for the Social History of Medicine and the author of numerous books, including Madness in Civilization, Hysteria, and others...”

retro lobotomy promostill square640

And here’s what it’s all about. Clicking on the above image takes you directly to a 1942 film by the Department of Neurology at George Washington University, Washington DC, where Dr. Freeman is drilling with increasingly wider bores, to then hacking into both sides of the skull with a chisel of a fully conscious patient, to then insert an instrument into both sides to destroy parts of the brain, quite graphically, and without editorial bias. There’s a lot of contemporaneous to 1942 brain anatomical and physiological science introduced in the first 4.27 minutes. So if that’s boring, skip to minute 4.29 of the 12-1/2 minute film. Be warned:  the film may be age-restricted in places. It can be an unpleasant experience to watch. You will hear the 1942 narrator explain how this can be done with local anesthesia, "...if the patient is cooperative."

Following that experience, you may now want to fully read the critical thinking of Professor Scull’s book-excerpt from the link above, where he deeply goes into an analysis of First, Do No Harm, directly into the context of the times.

Yes, the times. In the Kingdom’s Nest, this procedure, and similar others, some of which bore through the eye socket, continued long after the 1950’s.

Rigshospitalet

Rigshospitalet, Hospital of the Realm, made famous not only
by Lars von Trier's et al, The Kingdom series, but also as the
site 
of Denmark's last "official" lobotomy in 1983

Mentally Handicapped Danes Lobotomized Until 1983 : Discovery News

[The following, from the above extracted title, is from 2010, and is based on Jesper Vaczy Kragh’s 2010 book, “Det Hvide Snit,” direct translation, as explained above, The White Cut, and is part of a series from the University of Southern Denmark’s “...studies in history and social sciences.” Here is a Danish synopsis of that book, by its publisher: Det Hvide Snit 

Please excuse the poor translation below, which, at times, repeats itself with the facts. It is quoted directly from the source, linked via the above title]

Between 1947 and 1983, around 4,500 patients -- some as young as six years old -- underwent the operation. Mentally handicapped patients were routinely lobotomized by their doctors in Denmark between 1947 and 1983.

Conducting lobotomies was outlawed at the time.

Official figures show that around 4,500 Danes had the operation.

Many mentally handicapped Danes, including children, were lobotomized between 1947 and 1983, and many died from the operation, a historian behind a soon-to-be-published book on the topic told Danish media Thursday.

"Doctors did not count on curing them completely, but wanted to pacify them, perhaps to better their condition," Jesper Vaczy Kragh told the Christian daily Kristelig Dagbladet.

"The results of such operations generally were not good, and some 7.6 percent did not survive," said the medical historian, behind a book on lobotomies set to be published in October.

"What happened with people with mental handicaps is worse than what happened with psychiatric patients," he said, referring to many operations performed on children as young as six years of age, even though their brains were not yet completely developed.

Official figures show that between 1947 and 1983, when conducting lobotomies was outlawed in Denmark, around 4,500 Danes had the operation.

But it was previously unknown that many mentally handicapped people were subjected to the procedure.

Kragh estimates more than 300 mentally handicapped people were operated on during that period at Copenhagen's University Hospital and at a municipal hospital in Aarhus, Denmark's second largest city.

The president of LEV, the national association of handicapped people, Sytter Kristensen, said she was deeply shocked by the revelation.

"Those were highly educated people (doctors) who were taking advantage of defenseless people without being sure of having the slightest positive result," she told Kristelig Dagbladet.

Health Minister Bertel Haarder said he thought it was good to shine the spotlight on the cases.

"The explanation is that, for a long time, mentally handicapped people were not regarded as equal. Their lives were considered to be without value," he said.

4500 human beings, 70% of them women and girls, may not sound like many in the USA, for example, with a current population of 331.9 million.  But Denmark's population during that period ranged from 3.8 to 5.1 million.  In a shocking revelation in 2023 by a reliable source within Denmark's public health service (Sundhedsvæsenet), in 1990, a doctor at Rigshospitalet (Hospital of the Realm) in Copenhagen had the power to prescribe and execute a lobotomy on a patient. This particular medical power that a chief psychiatrist can have will play a significant role in the 2nd part of this article, where a chief psychiatrist refused to get a new patient's previous medical records, diagnostics and treatments.  He even refused to call or email this patient's previous psychatrist/psychotherapist, and got mad at the patient when he asked, "Isn't it basic medical science to first review a new patients medical history before treatment?The long term result of Dr Henning Vang's abuse of his power, in what he subsequently wrote into the patient's medical file, resulted in a quarter of a century of suffering for that patient.

What’s quite interesting in all this is how Russia, or the USSR at that time, fully banned lobotomy procedures in 1950? But why?

Here’s the abstract on that from the US National Institute of Health (NIH), and may help shed some light on that surprising fact:

This article examines how lobotomy came to be banned in the Soviet Union in 1950. The author finds that Soviet psychiatrists viewed lobotomy as a treatment of "last resort," and justified its use on the grounds that it helped make patients more manageable in hospitals and allowed some to return to work. Lobotomy was challenged by psychiatrists who saw mental illness as a "whole body" process and believed that injuries caused by lobotomy were therefore more significant than changes to behavior. Between 1947 and 1949, these theoretical and ethical debates within Soviet psychiatry became politicized. Psychiatrists competing for institutional control attacked their rivals' ideas using slogans drawn from Communist Party ideological campaigns. Party authorities intervened in psychiatry in 1949 and 1950, persecuting Jewish psychiatrists and demanding adherence to Ivan Pavlov's theories. Psychiatrists' existing conflict over lobotomy was adopted as part of the party's own campaign against harmful Western influence in Soviet society.


The following, “Medically reviewed by Alana Biggers, M.D., MPH, and by By Daniel Yetman on April 28, 2022,” takes a look at how it came to an end in the USA, 17 years after it was banned in the USSR. For the full story, click on the Dr Freeman link within the abstract below.

Lobotomies are no longer performed in the United States. They began to fall out of favor in the 1950s and 1960s with the development of antipsychotic medications. The last recorded lobotomy in the United States was performed by Dr. Walter Freeman in 1967 and ended in the death of the person on whom it was performed...


Doctor Murderer Freeman
Dr. Freeman, to the left

In one case, at Cherokee Mental Health Institute in Iowa, Freeman killed his patient by turning around for a photo oportunity, and the pick through the eye socket penetrated too deelply.

So what was going on, and, fewer with each passing year as old psychiatrists die off or retire, is still going on in Danish public health psychiatry? Part of the story sits up above with the lobotomy issue. “Competing to control institutions.” Danish patients with tough to manage psychiatric/psychological issues were not considered as an equal to other Danes. Some of that specific mental health ableism, which is discrimination and prejudices against those with disabilities, in that they are inferior to those who do the discriminating and hold those prejudices, is extant. In other words, it still exists, but is diminishing as fresh young psychiatrists, some with non-Danish ethnicities, and with critical thinking, international peer-reviewed, ajour neuroscience in their CVs.

Another feature to the specific Danish issue, in a small country of 5.8 million, and which can be found in other Scandinavian countries, is that public health psychiatry has been, and at times still is, managed by a sort of bubbled-in priesthood, often patriarchal, among confirmation-biased, chief psychiatrists, within what can be defined, through systems theory, as a closed social system. In other words, many of the chief psychiatrists, who managed psychiatric programs and hospital units, held themselves to a different standard than the scientific method requires, often failing, and according to some sources (as the lobotomy issue clarifies), willfully ignoring the international peer-previewed development of how psychiatry should be practiced according to the exponential growth of neuroscientific research. Danish universities currently rank high up in the list of institutions doing that research, but even well into 21st century, even today, it often is not incorporated into the public health system, called the Sundhedsvæsenet, in Danish, which is regulated by the 5 Regions of Denmark, with ultimate responsibility lying with the Danish Ministry of Health. (frequently changes names according to what coalition of parties form “the executive branch” after an election)

This short excerpt, from the 26-page 2021 Human Rights Report on Denmark, analyzes the tip of the iceberg:

Significant human rights issues included credible reports of excessive use of

solitary confinement, including of children....

...Several committees in the country’s Universal Periodic Review (UPR) in the UN
Human Rights Council (UNHRC) expressed concern that coercive measures were
used in mental health institutions, and that coerced treatment and the use of
restraint in institutions remained legal. In February the Danish Institute against
Torture (DIGNITY) published a briefing note finding the country’s 2014 action
plan to reduce the use of coercion in psychiatric institutions by 50 percent by 2020,
including a 50 percent reduction in the use of mechanical restraints with belts, did
not meet its goals. According to a 2020 report released by the Health Authority,
the use of belt restraints decreased, but the prevalence of patients subjected to one
or several coercive methods increased in comparison to the pre-action plan
statistics during a 12-month study period between July 2019 and June 2020.
The European Court of Human Rights (ECHR) concluded in September 2020 that
the government had violated the prohibition of inhuman treatment in a case where
belt restraints had been used on a patient for nearly 23 hours. On February 3, the
Supreme Court held that restraining with belts for 281 consecutive days was a
violation of the prohibition of inhuman treatment. The case related to a patient
who was detained at a psychiatric institution while awaiting a transfer to a more
specialized psychiatric hospital in 2015. The European Committee for the
Prevention of Torture (CPT), the Audit Office, and the ombudsman criticized the
use of belt restraints....

--Human Rights Report 

Now for the first of two recent case histories. Prior to his death, Mr. Graveson, the first case, gave full permission to have his story published on behalf of a better Denmark. But on behalf of some in his family, one tiny insignificant change has been made. The 2nd case, which can feel like a Stephen King horror story, according to a Dane who has read parts of it, will soon be published as Part 2 here at Idiot Free Zone.

CASE 1

 Ole Graveson had worked much of his life as microscope finmekaniker, where he basically maintained and repaired the best in German-made microscopes used in hospitals and universities all over the world, including China. He loved his adventures to China.

Around 1972, after having learned the basics of being a mechanic of precision equipment from his required Danish military service, on his way home from a bar, where he’d enjoyed a couple of beers in the Vesterbro region of Copenhagen, not far from the Central Train Station (Hovedbannegård), he suddenly lost consciousness. When the police arrived, and an ambulance was called, he began regaining consciousness.  Alcohol was noticed on his breath. Apparently, the police had assumed he’d fallen, hit his head, and may have judged him because of the shabby condition of his clothes, with the back of his pants ripped, and shirt dirty from whatever he’d fallen onto. He was not very coherent at the time.

Nor was he at the hospital ER, where it was again assumed he might be a bit of a bum who’d had a bit too much to drink. They didn’t really do much testing for alcohol blood levels at that time, unless critically essential. After discharging Ole, it began to briefly go downhill for him. His wallet was missing, which is likely why his back pocket had been ripped open down to his underwear. He had been assaulted and robbed. But he filed no charges, and assumed it would be easy for him to get his IDs back and such. But it wasn’t as easy as he thought, when he went to a nearby social services office for help. Further information was entered into what in Danish is called CPR (Det Centrale Personregister; The Central Registry of all of a person’s information: medical, police, economic, military, social services, etc.) The system is supposed to be very secure against unwanted intrusions, somewhat secure between governmental departments, but all too often, some people's personal information suddenly opens to someone who seeks it. In this case from 2020, 1.2 million Danes had their CPR numbers leaked for five years to Google and Adobe. That’s over 20% of the Danish population. In a letter from Google to the Danish government, they stated that no one’s personal information had been abused. 

Consequential to the whole episode, and then the alcoholism suspicions that emerged from the police and medical staff, personnel were required to write down everything about the incident, eventually typed into a file, and today, digitized, into that CPR.

Many years passed, he’d put the incident behind him, and in the early 1990’s, Ole had now put together his own company to maintain the most expensive optical microscopes available. He loved his work and the international travels it often required. He’d gotten married to someone who loved expensive cars and much else that Ole wasn’t interested in, but he submitted since he was so often not at home. One night, while working in his “lab,” as he called it, which was next to his home, someone entered, and again assaulted him, very violently. Though no bones, including his skull, were broken, he sustained severe head and leg injuries from it. He barely had the ability to reach up for a phone to call 112 (911) for emergency services. During the hospitalization, he was in and out of cognitive coherence, but not unconscious. He was uncooperative with the police who wanted to know what had happened.

The assault had a severe impact on his family life and business, someone was arrested and a divorce ensued, where he lost most of his assets, including his home. Being raised in solidarity with the then more liberal Social-democrats and labor union movements in a free-market economy, he didn’t advocate for himself about losing so much, so instantly. However, Ole’s mood began to swing from being sad to feeling energized to get back to work. There was also the issue from 1972, when he’d been assaulted, but analyzed as a possible alcoholic, which he never was, according to several interviews with him and what had been observed objectively over the course of 3 years. A psychiatrist then diagnosed his behavior as a bipolar disorder, and Ole was offered lithium to manage it. When he noticed how one of his hands began to exhibit a tremor once in a while, various diagnoses were discussed, including the suspicion that he was an alcoholic. There had also been a discussion about Parkinson’s disease. This hypothetical confirmation bias continued until he retired early into what’s called Førtidspension (literally: ahead of time pension, which generally requires medical confirmation of a handicap)

In 2003 Ole met someone who listened to his life history, and who had deep insight into Danish psychiatry and its inherent ableism in places.   In other words, a Dane such as Ole would never defend himself against anything a doctor would state with some force behind it. This individual, who wishes to remain anonymous, wondered if Ole hadn't suffered from brain lesions or bleeds due to the two assaults separated by a couple of decades, and that maybe lithium  also had something to do with his ever growing hand tremors, now in both hands. Due to how Ole had described his childhood as having given him a sense that nothing could harm him in Denmark with a lifetime sense of safety and security, this individual helped take him to a nearby hospital to ask a neurologist to offer Ole an MRI brain scan to rule-in or rule-out the suspicions. The neurologist was irritated by this sudden intrusion by someone with no medical credentials, and rejected the scan. A few months later the tremors grew in intensity, becoming ever more unmanageable. His friend took him again to the neurologist, this time advocating more critically empowered on behalf of Ole to listen to a tiny bit of what he’d suffered all too passively in his life, from the two assaults and a set of major losses.

Ole then got the MRI, which confirmed untreated bleeds from long ago. He was later offered a comfortable beskyttet bolig, in this case, a full apartment with a living room in a wooded area with an elevator and a button to call for instant help from a nurse or a sosu assistent (social and health care assistant) from the nearby municipal-run office complex. Before he passed away, Ole told his friend that he so wanted a few more years to experience life.

To put everything into perspective, due to a coming election and fake news everywhere, ”[e]mulate Denmark, says Gerald F. (Jerry) Davis [Professor of Business Administration and of Management and Organizations at the Michigan Ross business school of the University of Michigan and] author of the 2016 book The Vanishing American Corporation: Navigating the Hazards of a New Economy, and a recent "...visiting scholar in the Corporations and Society Program at Stanford Graduate School of Business...

“...If we wanted to have a more vibrant business sector and more startups, then we should have a Danish-style social welfare system,” he says.

And he states this from the highest levels of economic knowledge. The "U.S. News & World Report, in its 2019 ranking of top MBA programs, placed Michigan Ross [as] seventh in its ranking of business schools in the United States."

In Part 2, soon to be published, we briefly first explore, in very simple terminology (deeper with the hyperlinked supporting evidence), what happens to a child’s brain, and its lifelong consequences, if abused in any way by parents and primary caregivers. The article then briefly goes into what the deceased parents of this next life history case had experienced during the Nazi Occupation of Denmark, where some myths are stripped of their PR cloth, including the pope’s (his mother was extreme Catholic) and the Indre (Inner) Mission biblical literalist sect of his father’s religion, within the Danish State Church (Evangelical Lutheran). Though that true story reveals extreme ritualized abuses, none of it is described inappropriately graphic in the text. And the story does end on a very healing note in Denmark.

RESOURCES

Below are scientific and therapeutic help links for further reading

Understanding the Effects of Maltreatment on Brain Development (U.S. Department of Health and Human Services)
Abstract: In recent years, there has been a surge of research into early brain development. Neuroimaging technologies, such as magnetic resonance imaging (MRI), provide increased insight about how the brain develops and how early experiences affect that development. One area that has been receiving increasing research attention involves the effects of abuse and neglect on the developing brain, especially during infancy and early childhood. Much of this research is providing biological explanations for what practitioners have long been describing in psychological, emotional, and behavioral terms. There is now scientific evidence of altered brain functioning as a result of early abuse and neglect. This emerging body of knowledge has many implications for the prevention and treatment of child abuse and neglect

Dissociation FAQ’s - International Society for the Study of Trauma and Dissociation
Dissociation is a word that is used to describe the disconnection or lack of connection between things usually associated with each other. Dissociated experiences are not integrated into the usual sense of self, resulting in discontinuities in conscious awareness (Anderson & Alexander, 1996; Frey, 2001; International Society for the Study of Dissociation, 2002; Maldonado, Butler, & Spiegel, 2002; Pascuzzi & Weber, 1997; Rauschenberger & Lynn, 1995; Simeon et al., 2001; Spiegel & Cardeña, 1991; Steinberg et al., 1990, 1993). In severe forms of dissociation, disconnection occurs in the usually integrated functions of consciousness, memory, identity, or perception. For example, someone may think about an event that was tremendously upsetting yet have no feelings about it. Clinically, this is termed emotional numbing, one of the hallmarks of post-traumatic stress disorder. Dissociation is a psychological process commonly found in persons seeking mental health treatment (Maldonado et al).

OUT OF THE FOG - Complex Post Traumatic Stress Disorder (C-PTSD)
Complex Post Traumatic Stress Disorder (C-PTSD) is a condition that results from chronic or long-term exposure to emotional trauma over which a victim has little or no control and from which there is little or no hope of escape, such as in cases of domestic emotional, physical or sexual abuse; childhood emotional, physical or sexual abuse; entrapment or kidnapping; slavery or enforced labor; long term imprisonment and torture; repeated violations of personal boundaries; long-term objectification; exposure to gaslighting & false accusations; long-term exposure to inconsistent, push-pull,splitting or alternating raging & hooveringbehaviors; long-term taking care of mentally ill or chronically sick family members; long term exposure to crisis conditions...

Religion Exploits Normal Human Mental Processes
Because the child’s mind is uniquely susceptible to religious ideas, religious indoctrination particularly targets vulnerable young children. Cognitive development before age seven lacks abstract reasoning. Thinking is magical and primitive, black and white. Also, young humans are wired to obey authority because they are dependent on their caregivers just for survival. Much of their brain growth and development has to happen after birth, which means that children are extremely vulnerable to environmental influences in the first few years when neuronal pathways are formed...

Religiously-based psychological abuse of children can involve using teachings to subjugate children through fear, or indoctrinating the child in the beliefs of their particular religion whilst suppressing other perspectives. Psychologist Jill Mytton describes this as crushing the child's chance to form a personal morality and belief system; it makes them utterly reliant on their religion and/or parents, and they never learn to reflect critically on information they receive. Similarly, the use of fear and a judgmental environment (such as the concept of Hell) to control the child can be traumatic.

National Center for PTSD - Treating C-PTSD, a professional site
Many traumatic events (e.g., car accidents, natural disasters, etc.) are of time-limited duration. However, in some cases people experience chronic trauma that continues or repeats for months or years at a time. The current PTSD diagnosis often does not fully capture the severe psychological harm that occurs with prolonged, repeated trauma. People who experience chronic trauma often report additional symptoms alongside formal PTSD symptoms, such as changes in their self-concept and the way they adapt to stressful events.

Traumatic Stress Education & Advocacy- Sidran Institute
One of the primary roles of Sidran Institute’s Help Desk is to assist people who have been traumatized in finding various kinds of help. “Treatment” is usually sought when the behavioral adaptations (usually called “symptoms”) typical of trauma survivors become disabling, interfering with work, home life, recreation, sleep, parenting, and other aspects of daily function. Our aim is not only to help people feel better and function better, but also to help them learn to be informed and empowered consumers in general and consumers of mental health services, in particular. We hope trauma survivors find that taking appropriate and well-considered action to improve one’s life is made a little easier by the information on this page.

If you are currently in crisis: The process of choosing a helpful therapist takes some time, thought, and focus. If you are currently in a crisis, or are worried that you might hurt or kill yourself or someone else, please contact your community’s mental health center, hospital emergency room, or a hotline. Here are some hotline numbers that might be useful:National Suicide Prevention Lifeline: 1-800-273-TALK
National Domestic Violence/Child Abuse/Sexual Abuse: 1-800-799-SAFE
National Youth Crisis Hotline: 800-442-HOPE

kimWall

(This is thought to be the final photo of Kim Wall -- an image capture from a smartphone video -- as she sailed out of Copenhagen Harbor onboard the Nautilus.  Seen also is Peter Madsen)

October 21, 2020, UPDATE-- Please see the major updates below, including Peter Madsen’s briefly horrific escape, having threatened guards with a false gun and explosive device wrapped around him,Tuesday, Oct. 20, 2020, from a Copenhagen prison, where he has been serving a life sentence since 2018. 

Here is a 1 minute video of his capture



A bizarre case of manslaughter or homicide -- that has begun to remind this writer of the 2011 Scandinavian TV crime series, “The Bridge” – just got stranger than fiction. Yesterday, August 21, a decapitated, armless and legless torso of a woman was discovered not far from that bridge.


BACKGROUND:
Several hours after 30-year old Swedish journalist, Kim Wall, had sailed out of Copenhagen Harbor on Thursday evening, August 10, onboard the Nautilus, touted as the world’s largest homemade submarine, it went missing. The journalist’s boyfriend raised an alarm after he’d lost contact with her, informing the police that Kim had been on a freelance assignment for an article about the submarine and its inventor and owner, PeterRocketman" Madsen.   

Madsen is considered a hero among some circles, not only for the submarines he has built (with the help of many) but also for his work to help launch a Danish rocket into orbit.  See "From Earth to Mars," by Petre Guest.




(2-1/2 minute video documentary, released only 3 months ago, describing Peter Madsen's space ambitions)

(1-1/2 minute video by Washington Post.  It includes a brief profile of Kim Wall)

UNJ
(clicking on this image will take you to many of Kim Wall's investigative journalistic work, including an article on UNH's STEM Discovery Lab)




kim og peter og ubåd(From left to right: the sunken Nautilus being raised, Swedish journalist Kim Wall, Danish inventor Peter Madsen)

Danish and Swedish police and coast guard immediately launched a major search of the area the submarine had likely navigated late that Thursday night. On Friday morning at 10:30 AM, the submarine was sighted just south of the Copenhagen island of Amager, in the Køge Bay overlooking the Baltic. The boat had sailed under the very bridge connecting Sweden with Denmark, where the award-winning 2011 crime fiction had been filmed.  That fiction opens with the shocking discovery of a woman's body, cut in half at exactly the Danish-Swedish border, on the Øresund bridge-tunnel.

As a private boat raced towards the submarine, Madsen jumped overboard, after which it suddenly sank. Once on shore, Madsen explained that he didn’t know where Kim Wall was, saying he’d dropped her off by the coast of southern Copenhagen near a restaurant. He also stated that the submarine sank due to a small ballast problem that grew unexpectedly critical as he tried repairing it. Mysteriously, he is whisked away by the police, and the next bit of news is that Madsen has been arrested on manslaughter charges. Following a preliminary court hearing, which is constitutionally required within 24 hours of an arrest, his attorney, Betina Hald Engmark, stated that he pled innocent but would not contest the court’s ruling that he remain incarcerated for 24 days while the police investigated the case. The court-hearing was closed to the public, in the interest of Kim Wall’s family, stated the defense, so the facts of the case have only trickled slowly into the public domain, and has also been the source of much speculation.

The submarine sank in shallow waters – 7 meters, some 20 feet -- so it was immediately salvaged by a crane-barge and brought to Copenhagen for the police to complete a forensic investigation. A police spokesperson then stated that the submarine had been willfully sunk. It was also disclosed that a ship in the heavily navigated sound separating Denmark from Sweden had nearly collided with the submarine in the night hours of early Friday morning, August 11, right at the time when Kim Wall’s boyfriend had alerted the police, and that it had sailed on the surface without exhibiting legally-required lights.

Three days ago it was learned that on Monday, August 14, Peter Madsen had changed his story, admitting that Kim Wall had accidentally died in the submarine and that he’d given her a burial at sea. This shocks her family, colleagues and friends in Sweden, as well as the many Danes acquainted over the years with “Rocketman” Peter Madsen.

As ships and helicopters searched for Kim Wall’s body, yesterday afternoon, August 21, a politiman cycling along a dike overlooking the Baltic by the wetlands on the southern tip of Copenhagen’s Amager Island was shocked when he came upon the floating torso of a decapitated, armless and legless woman. After a preliminary obduction, a police spokesperson stated this afternoon (aug. 22)  that the torso might be that of Kim Wall, but final confirmation still awaited a DNA analysis.  That report is anticipated for release tomorrow, August 23.  The torso's limbs and head had been severed by human intent, according to the preliminary autopsy.

This story will be periodically updated as the facts come to surface.

(Copenhaen police at the site of the torso find)



UPDATE, Wednesday, August 23, (7:30 AM CET:)  >>Der er en match<< "There is a [DNA] match [to Kim Wall]" tweeted Copenhagen police.  This evidence contradicts a statement made yesterday by Madsen's attorney, Betina Engmark, where she stated (translated):  "No evidence has been brought forth that this body has anything to do with my client.  And therefore these two events [Kim Wall's disappearance while with Madsen and discovering the torso] should not be linked.  This is what the police is  doing, and that is not appropriate."

Peter Just, chairperson of the board of directors for Peter Madsen's private space and submarine research innitiatives, released this statement (translated from the Danish):  "[We] are furioius over what has occured to Kim Wall.  Something horrific happened onboard [the submarine]..."  He went on to explain, on a very sad note, how this spells the end of years of work from many people deeply vested in contributing to the knowledge of pushing the boundaries of humanity's outer and deeper limits.  "The dream is shattered for us all.  The project pales in comparison with a meaningless loss of human life. There is no longer a desire to continue. Confidence is broken."

In a 9 AM (CET) press briefing, just now broadcast on Danish TV-2, Copenhagen police homicide chief inspector, Jens Møller, disclosed that though metal had been attached to the torso, it had failed to keep her submerged.  Further, that despite the intentional sinking of the submarine, forensics found blood traces in it that also match Kim Wall's DNA profile.  Jens Møller added (tarnslated), "Regarding the autopsy, I can confirm evidence of post-mortem cuts on the  torso, which appear to be an attempt to prevent the torso from rising to the surface from the sea floor due to the accumulation of gasses."

In a 4 PM statement to DR (Danish public TV), defense attorney Engmark said (translated), “My client and I are very relieved that the find [torso] has finally been identified by the police. We are gratified that this part of the case has been resolved.” She concluded by reiterating Madsen’s plea of innocence to murder charges.

 MAJOR UPDTE, OCTOBER 20, 202O:  Convicted sex-murderer, Peter Madsen, captured after escaping from his life sentence.  Here is the story from The GuardianPeter Madsen threatened a prison employee with what appeared to be a homemade explosive device before fleeing from Herstedvester jail, pursued by guards, who alerted a nearby police patrol.

Madsen had tried to hide in a white van but officers surrounded the vehicle and dragged him out. They then handcuffed him to a fence while waiting for bomb disposal officers to arrive.

The Ekstra Bladet tabloid posted a video of Madsen sitting calmly on the grass with his hands behind his back while armed officers watched from a short distance away. After several hours, specialists established the belted bomb-like object around his stomach was a fake.

Police then arrested Madsen and took him back into custody. Nobody was physically hurt during the escape, the head of the prison, Hanne Høegh Rasmussen, said on Tuesday in a press conference, but she added that the incident had traumatised her employees.

In 2018, Madsen was sentenced in the Copenhagen city court to life in prison for killing Kim Wall, a 30-year-old reporter from Sweden whom he lured onboard his homemade submarine with the promise of an interview. He dismembered her body and dumped it at sea..."


Here are a couple of short (under 1 minute) videos of the dramatic capture of the horribly dangerous man

Here is a summation, from The Guardian, of the entire Peter Madsen case (my original article here was written in 2017, prior to the court case and the horrific evidence which it brought forth):   

"A Danish inventor has been sentenced to life in prison for the premeditated murder and sexual assault of the Swedish journalist Kim Wall on his submarine in August last year.

The judge, Anette Burkø, and two jurors found Peter Madsen, 47, guilty of all three of the main charges of premeditated murder, aggravated sexual assault and desecrating a corpse.

“This is a cynical and pre-planned sexual assault of a particularly brutal nature on a random woman who, in connection with her journalistic work, accepted an invitation for a sailing trip on the accused’s submarine,” Burkø said, explaining the rare decision to hand down Denmark’s most severe sentence.

Wall’s parents, Ingrid and Joachim Wall, who had followed much of the trial from the courtroom, were not present for the verdict, although the seven family seats were taken by other friends and relatives.

Wall was 30 when she died. The journalist had reported from all over the world for Time magazine, the New York Times and the Guardian, among others. Her boyfriend told the court she was “incredibly ambitious” and “amazingly curious”.
[...]
The case has gripped Denmark ever since Wall failed to return from a trip on Madsen’s self-built Nautilus submarine on 10 August. Madsen was a semi-celebrity at the time of his arrest, having made a name for himself with three self-built submarines and two crowdfunded manned space projects.

Burkø said his version of events – that Wall died when an accident filled the vessel with toxic exhaust fumes – was “not credible and not consistent with the following decision to dismember the body”. Madsen had changed his explanation for Wall’s death several times, Burkø noted.

She said the court instead believed the prosecution’s theory that he had sexually tortured Wall to fulfil a violent sexual fantasy.

It is very unusual for a life sentence to be handed down for the murder of a single person in Denmark, where prisoners sentenced to life imprisonment serve an average of 16 years.
[...]
Over the course of the 11-day trial, spread over seven weeks, prosecutors presented their case in often horrific detail. But Madsen himself refused to go into detail in court, calling Wall’s death “a very, very traumatic event which I do not want to describe”.
[...]
During the trial, the court heard from a woman to whom Madsen had confessed that he was “a psychopath, but a loving one”, a judgment backed up by a forensic psychiatric report that described Madsen as a “perverse polymorph” with “psychopathic traits”.

Such was the interest in the trial that the Copenhagen district court opened up a special room with a video link on some days to accommodate as many as 115 journalists from 15 countries. Wall’s parents attended the trial most days and quietly took notes from specially reserved seats beside the media section.

UPDATE, 5 AM Copenhagen, October 21, 2020:  In an interview broadcast during the 5 AM, October 21, 2020, Danish TV2 news, Denmark’s Minister of Justice (Attorney General), Nick Hækkerup, stated that aside from ensuring that such an incident never be repeated, it will be unlikely that Peter Madsen will continue being interred in the top-security Herstedvester Prison near Copenhagen. It houses up to 158 of Denmark’s most heinous and predatory criminals, but with psychiatric care, other therapies and education etc. readily available to the inmates. During Madsen’s 2 years of a life sentence since 2018, he manipulated a female prison guard to fall in love with him, ruining her career, and also manipulated 39-year old Russian activist, Jenny Curpen, in a self-imposed exile in Finland, to marry him in 2019.  In this BBC story, she accuses Denmark of having demonized Peter Madsen.

jenny
Jenny Curpen

Cancer Fighter

I am a three time relapsed Multiple Myeloma cancer patient. I don’t know any four time relapsed MM patients. MM is the medical terminology for bone marrow cancer. MM cancer begins in plasma cells, a type of white blood cell. These cells are part of your immune system, which helps protect the body from germs and other harmful substances. In time, plasma Myeloma cells collect in the bone marrow and in the solid parts of bone to become plasmacytoma. Plasmacytoma is plasma cell Myeloma as a single lesion or tumor. When the plasma cell Myeloma develops into multiple lesions it becomes Multiple Myeloma. Often MM symptoms go unnoticed, delaying a Myeloma prognosis.

Multiple Myeloma is what is called an orphan cancer, meaning very few people have it. About 20,000 people receive a MM prognosis every year. About 10,000 people die from Myeloma bone cancer every year. Approximately 120,000 people in the U.S. have MM cancer. No one knows the exact causes of Myeloma bone cancer or why plasma cell Myeloma forms. An MM prognosis is more common in older people and African-Americans.

This extremely deadly form of cancer has no known 100% cure. However, if caught soon enough with proper cancer treatments available today many MM patients can lead fairly normal lives by using various FDA approved medications that are proving to be very successful in the containment of the plasma cancer cells and control of MM symptoms.

I was diagnosed in July of 2003. However, the first indication that MM was present was in my first annual physical in 1999. A spike in the protein level of my IgG (immunoglobulin). The spike continued through the 2000 and 2001 annual physicals. I asked, at that time, my primary care Dr. about the spikes, his response was...don’t worry about it. Fortunately he retired. I had copies made from his files of all of the medical records that I had accumulated over the years.

Multiple Myeloma plasma

The first thing my new, and current, primary care Dr. looked at was the 1999 annual physical. He asked me about the spike in the IgG protein. I told him I didn’t know what it means. He recommended that I do a 24 hour urine sample. I did. The results came back with the test result showing the presence of the Bence-Jones protein. (A Bence Jones protein is a monoclonal globulin protein or immunoglobulin light chain found in the urine, with a molecular weight of 22-24 kDa. Detection of Bence Jones protein may be suggestive of Multiple Myeloma or Waldenström's Macroglobulinemia.) My primary care referred me to an oncologist right away.

I had a consult with him. His explanation of the presence of the Bence-Jones protein was it could be that the protein is just there, or it could be a precursor to Multiple Myeloma. The only way to find out what the presence of the Bence Jones protein meant was a bone marrow biopsy. Three pretty scary words. I was also scheduled to have a bone survey to see if there were any lesions on my bones. A bone survey is a complete set of x-rays of every bone in the body, top of the head to end of toes. The biopsy was quick and painless. I was knocked out for the whole procedure. There were about five nurses and several others who assisted. Two days later the oncologist called me, yeah he called me, and said that I should come into the cancer center and that we would discuss the test results. I saw him the next day. He told me that the biopsy did show the presence of the Myeloma cancer cells. Shocking? Yes. Scary? Yes. Especially when the Dr. told me there is no known cure.

About the middle of the 90s, the MM researchers had sent out a notice to most of the pharmaceutical companies telling them they need a medication that would do this, this and this. The pharmaceutical companies responded with...that drug already exists, it’s called Thalidomide. At that time there was only one FDA approved oral chemotherapy drug on the market...Thalidomide. Yeah, that Thalidomide. It had been banned worldwide since the very early 60s. The makers of Thalidomide, who were in Europe, were trying to get the FDA to approve it as the vast amount of users was enormous here in the U.S. Fortunately the FDA had just appointed a new FDA Executive Director, she said no way is that medication going to be prescribed for anyone through any pharmacy in the U.S. She told the pharmaceutical company that it needed more extensive testing. The drug was used by pregnant women so they could get some sleep while dealing with their pregnancy. Unfortunately not enough testing had been done, when suddenly there were continuous births of children with horrible birth defects. Over 8,000. The common drug used by all of these women was...Thalidomide. It was immediately banned worldwide.

The National Cancer Institute and the MM researchers went before congress to ask for a chance to do a trial study to see how effective Thalidomide was. Congress approved the MM team’s request to do the clinical trial, but the Thalidomide had to be tightly controlled. After the clinical trial ended the test results showed that Thalidomide was effective in about 70% of the patients, if the MM was caught soon enough. An astounding response to a clinical trial. Congress approved prescribing Thalidomide but again, very tightly controlled.

After my oncologist told me about the Thalidomide he said he wanted to be aggressive with it. He prescribed 10mg of Thalidomide every day. In order to get the medication started there were several consent forms that had to be signed, most dealing with do not allow women who are pregnant or could become pregnant to share the Thalidomide.

The bone survey results came back to my oncologist, but my family and I had taken a trip back to the mid-west to visit my mother. The oncologist, before we left, asked for the telephone number of where we could be reached. Wow! He actually called the hotel where we were staying. He called and told me that the bone survey showed no lesions. He told me I was lucky as we caught the MM in its early stages.

I took the Thalidomide for about two years, then my test results showed that the Thalidomide had reached a level that it wasn’t quite within the range of the test numbers. My oncologist then prescribed a steroid called Dexamethasone, 40mg once a week, that I was to take in conjunction with the Thalidomide. Wow, what a steroid! Dex, as it is known by MM patients, immediately started bringing the test results down to a lower level. Good news.

After about five years of the Thalidomide and Dex combination, my oncologist said the test results were now showing that the Thalidomide and Dex cocktail wasn’t effective any more. He recommended a recently FDA approved medication for MM patients. It is called Revlimid. Rev. is a derivative of Thalidomide. I was prescribed 10mg a day, every day. I also continued with the Dex. There was another drop in the level of MM cells. I took the Rev/Dex combo for about five years. Then its effectiveness leveled off, just falling a few levels above the high end of the test results.

There were no more FDA approved drugs at this time. Then my oncologist who I had been seeing once a month retired. Not only was he a great Dr., he was also a really great guy. I was bummed when he told me he was going to retire. In the ten years of seeing him once a month we found we had a lot in common from politics to religion and about any topic we would discuss. After a while the nurses would have to knock on the exam room door and tell him he had other patients he had to see. Drs. need to see a new patient every 9-14 minutes.

I was now provided a new oncologist who immediately sent a request to my healthcare provider to send me to a specialist outside of our insurance coverage. The request was approved. I met the Dr., a young man and very knowledgeable about MM, at a local cancer center. He is an acute lymphoma specialist. He told me the only method of fighting the MM at this point was to do a Stem Cell Transplant. Three more pretty scary words. He tried to reassure me that this procedure was routine. Yeah right. Routine for doctors and staff, but as far as I was concerned it wasn’t routine for me.

Three days after the discovery of MM I was told I had atrial flutter. Not good news. There were four ways of dealing with the A-fib. Drugs, shock the heart into regular heartbeat, leave it alone, or put a small device that would go into my heart and scorch some nerves, an ablation procedure. Told the cardiologist I would have to think about it, as I was still trying to wrap my head around the Myeloma. Good thing I did, as my primary care called and said he had sent me to the wrong cardiologist. OK. The flutter was first picked up by another cardio Dr, from our old insurance plan. I was prescribed a drug called flecainide. After about three weeks to try to figure out which a fib procedure to do, I was told to go see the new cardio guy. I did. He did three EKGs and couldn’t pick up the flutter. He asked me when I started taking the flecainide. I told him about a month ago, he said sometimes meds take a little time to kick in. He told me to come back in three months for another check-up. He reduced the number of flecainide tabs. I have no problems with A-fib.

After the first meet with the MM specialist, a consult, as I was leaving the exam room, the Dr’s. words were “Tom you’re not supposed to be alive.” I laughed and said...thanks, I think. So far I had beat the life expectancy from seven to ten years.

I did a 14 and a half week pre-stem cell transplant routine of heavy duty oral drugs and sub Q injections of MM killer drugs. Sub Q injection means directly into the stomach. Plus, a drug, Neupogen and very expensive, that helps produce white blood cells. Also by sub Q injection. On top of this I am a Coumadin user, and you can’t take Coumadin and do a stem cell transplant. I had to bridge, switch, to a drug called Lovenox, twice a day by sub Q injection. I also had a battery of tests to do in order to make sure I am ready for the procedure. Balancing Dr’s. appointments and tests with a lot of Drs., and trying to time them with not getting to far away from the bathroom was challenging. I dropped 20 lbs during this procedure. Just not hungry.

Around the first part of December 2013 I was given the big chemo blast to kill my entire immune system. No pain. Just a long four hour procedure. I was told to chew on crushed ice so the chemical taste would not be so bad, it worked. The next day I was admitted to the Cancer Center where I was hooked up to a machine that collected stem cells from the blood. I had a port coming out of my right shoulder area. I was hooked up to the machine. After about three hours the first day, the machine stopped working...not good. I was done for the day. But had about three more days of collection. When I showed up the 2nd day I asked the nurse if the machine we were going to use was the same one we used the day before. He said no and that he had swapped it out for the one in the next room. A person needs a minimum of 2 million stem cells to do a transplant. The specialist told me I may not be able to produce that many as I had taken Thalidomide and Revlimid for over 10 years. After the three days of collection I produced 3.2 million stem cells. The transplant was on.

I was admitted to the hospital on about the 4th of December. The comedy of errors started then.

My wife and I had to be at the hospital at 2 p.m. in order to get checked in. Seemed reasonable. We were finished with all of the paperwork by four. Lots of paperwork when a new patient is being admitted for a stem cell transplant. We were shown to my private room, as all SCT patients are to receive. All patients on this floor were SCT patients or bone marrow transplant patients. The floor has its own ventilation system to keep out, as best as possible, all of the WMD.

I hadn’t had anything to eat since early morning. It was now 5 p.m., then 6 p.m. then 7 p.m. then 8 p.m. I’m really hungry. Nobody had stopped by to see if I was hungry. I finally pushed the little red button on my hospital bed to get some action. The nurse at the nurses’ station said she would connect me with the kitchen. She did. A very upset kind of voice answered and said he would send up some food. It arrived. And before I could say take it back and warm it up, the dude was out the door. Cold mashed potatoes, cold gravy, cold green beans and a cold slab of roast beef. I ate the cold mashed potatoes and gravy. In hindsight I should have called down to the kitchen and told them to get their butts back up here and heat this tray up. I was not a happy camper.

The food I was given for each meal tasted like it had too much salt. Nobody told me that the chemo blast might affect your taste buds. It did. After a few days of this, I couldn’t handle it any more so I subsisted on grilled ham and cheese, grilled cheese, ham sandwich, cheese sandwich, even the milk tasted like it had salt in it. My breakfast every day, was milk with frosted flakes. I dropped another 20 pounds while in the hospital for 20 days.

The re-infusion of my own stem cells took place on December 5 and 6. A really great infusion expert handled the re-infusion. Not much to it, warm up my stem cells, make sure all of the code numbers were the same, hook them up to the port, hang it upside down so the whole thing is gravity feed. Talley ho. I was closely watched for the first 48 hours to make sure there were no side effects. There weren’t.

I was a model patient. For a while. Several nurses would stop by on their breaks and I would discuss the wide world of the web with them. Since I had retired as Vice President of Marketing for a leading web development team that developed high end web sites for law firms the nurses listened to every word. It didn’t hurt for me to discuss this as I was pretty much out of it. Every morning at 8 a.m. I was given what I call a “pepper upper.” Called Ativan. Every four hours, yeah I took advantage of it. I am also a Coumadin person, but one cannot take Coumadin and have a SCT. I was bridged to Lovenox. (Lovenox is a needle in the stomach, twice a day. My stomach was black and blue as I had to do Lovenox injections twice a day for two weeks prior to admission to the hospital.) However, the next big surprise came when the staff said I could no longer take the Vicodin for the three compression fractures pain in my lower back. It has acetaminophen in it. I would have to take oxycodone. The nurse asked me if I had any pain coming on, to let him know. My response was “Yes.” I said yes I could feel pain coming on as we spoke. Oxycodone was in my hands in five minutes. Ativan every four hours, oxycodone every four hours. I had it worked out, repeat drugs every two hours and I’m out of it. Made my boring days much more pleasant.

Then the comedy of errors began to really happen. Totally unexpected by me.

After the infusion of my stem cells, I was told to get out of bed and walk around the floor level I was assigned. Bad idea as far as I was concerned. Even though the floor was dedicated to transplant patients, there were a lot of visitors. All probably contagious with some type of WMD. So I walked around my room. Each patient had their own private room.

I was hooked up to a monitoring device 24 hours a day. I called it “my robot.” Then occasionally another device was hooked up, another robot. The first robot took blood pressure, temperature and pulse. After about a week a nurse came in to take my temperature. 100.1. I told her that was kind of low, so she took it again, 101.5, which sounded a little closer to reality than the 100.1. I told the nurse that the 101.5 sounded a little closer, then I asked her which one was she going to use. She said let’s use the lower one. Huh!? So she did.

This robot thing lasted for the entire time I was in the hospital.

One day the nurse came in to take my temperature. I had her take it three times from the same robot. None of the three were the same. I told her to go get another robot, she did, again three different temps. Completely different from the first three. Then I told her to get a third robot and leave the first two in the room so they wouldn’t get confused. Again three different temperatures, all different from all of the others. Nine different temperatures with three different robots. I asked the nurse which temp she was going to use, she said she didn’t know. Didn’t know? Huh!? I joked with her about a “service contract” with these robots, she didn’t get it. She left the room in a huff. I never did find out which temperature she used.

After about four days, I decided I wanted to take a shower. Each room has its own shower. I called the nurse, told him I wanted to take a shower. He said he’d be right there. About five minutes later he walked in carrying what looked like a large Target zip lock baggie and a roll of paper tape. I asked him what’s with the baggie. He said it was to cover up the port. Ports are not supposed to get wet. I said you’re kidding me. He said no and began taping this un-sterilized Target baggie to my chest. I was stunned. I asked him if there were any adhesive patches that were specifically made for this type of issue. The nurse said yes but they were extremely expensive. Extremely expensive?! At this level of care?!

The next day the specialist who made the rounds each morning came in. While she was checking me and my chart out I told her about the three different robots and the nine separate temperatures. She didn’t seem too interested. Especially when I told her I thought it would be a good idea to check the contracts when purchased to see if there was any kind of “service agreement” attached to the contract. She laughed and left the room without answering or even acknowledging my question. I was not pleasant with her for the remaining time I was in the hospital. Blow me off like that is not a good idea.

Next...My hair was beginning to fall out, so I called the nurses station and told them time to shave my head. The male nurse came in and said the shears had been stolen. What? Stolen? He said yes both pairs. I told him they were probably at the Spring Valley Swap Meet, and we both laughed. Fortunately I had brought my electric razor with me. It is not set to trim hair on the top of the head, just shave and trim sideburns. We used it. Stolen hair trimmers, from the hospital, crazy. Give me some more Ativan and oxycodone, quick.

No problem with diarrhea or nausea. They have meds to help with everything. If I ever felt either of these coming on, just push the little red button.

All beds were hooked up to a monitoring device that had an alarm so if a patient fell out of bed, the nurses would come running. I was never that close. However, when one has to use the bathroom, one has to push the little red button. Sometimes I would cut it kind of close. Even a matter of a couple of minutes. If I had to wait more than 30 seconds I’m out of the bed, grabbing my robot and heading to the bathroom, setting off the alarm. Did I care? No. When you have to go, you have to go. The nurses finally got it. Hedges will head to the bathroom as quickly as possible. No accidents in my bed.

Hospital beds are not comfortable. My wife and a friend went to a home medical supply and bought me a very comfortable mattress the same size as my bed. The nurses were astounded. They had never thought to tell the patients that this is an option. OK. I started something.

Actually I started a lot of things in my room. The long conversations with the nurses after midnight. Guess I was the only one who could speak “nurse.” sort of a...tell me about your troubles with your husband or boyfriend. I should have been charging them by the hour. But full of Ativan and oxycodone certainly helped me get through the conversations. Just nod my head yes and no. Oh, and could you get me another oxycodone, I feel some pain coming on.

I finally realized I didn’t have to order my next day’s meals from the iTab, or whatever they use to tell me my options for meals the next day. Pizza was never mentioned. So I told the menu person I wanted some pizza for lunch. Bad idea on my part, it gave me severe diarrhea issues. But like I said, there is a powerful med for everything at the hospital. But the pizza, with everything tasted great.

After about 15 days in the hospital I was beginning to think I wouldn’t be released until after the New Year. Much to my surprise the Dr. who did the rounds told me I had an infection somewhere, somewhere? Huh!? And that they were going to try a third antibiotic with a little broader spectrum to kill infections. Yeah, broader spectrum, bring it on. It worked. I woke up about 2 a.m., after three days, in a cold sweat. After I pushed the little red button the nurse said this is great as your fever has broken. The Dr. told me if my infection was permanently gone in three days I would be released. It was gone. I came home on Christmas Eve. Best Christmas present I ever had, or will have.

After release from the hospital I was still on the Lovenox. The specialist told me he would prescribe some more. The pharmacist called the next day and asked me if I wanted to fill the prescription for Lovenox. I asked him what the co-pay is. He said $4,000. I told him don’t fill it. I immediately called my primary care. He said let me take care of it right now. About ten minutes later the special care pharmacy called and said they had the Lovenox ready. I asked about the co-pay, the fellow said it’s free. Huh!? Free!? He said yes, and then asked me if I wanted to have it delivered...I said, of course. He was at my front door in about 15 minutes.

I continued to see the specialist at the cancer center weekly for the next three months. Labs were done once a week. The labs always had good test results. I was put on a maintenance dose of a drug by sub Q injection every week.

Two new meds had been approved by the FDA in about July of 2015, fortunately as the stem cell transplant was not working any more. One of the new meds was by sub Q injection...I rejected it right away. The other was another derivative of Thalidomide. Pomalyst. I selected it. Within three months my monoclonal (myeloma) protein count went from 0.8, high end of the spectrum, to “no monoclonal proteins detected.” Meaning the MM cells are still there but the sophisticated test can’t find them. Ha. Ha. Kind of like “hide and seek.” This same test result has been ongoing for the past five months. However, my platelet count has been low, my daily dose of the med, a 1mg capsule, was reduced to one capsule every other day.

I also have an immunoglobulin infusion, 25gms per day, once a month. To help my immune system. The infusion is a two day effort. The first day I also receive a Zometa infusion and a B-12 shot. The infusions take about 4 hours.

I continue to see my oncologist once a month. Labs once a month. So far so good, April 25, 2016.

I am a member of the San Diego Multiple Myeloma Support Group. Our Support Group is under the umbrella of the International Myeloma Foundation, (IMF) www.myeloma.org. If anyone has any questions about Multiple Myeloma there is a toll free number on the IMF web site.

The Support Group meets the second Monday of each month. Membership in the Support Group is free for all patients, family members, caregivers and guests. We always have a guest speaker who will have MM as their topic. Guest speakers have included Dr. Brian Durie, Executive Director of the International Myeloma Foundation, an attending physician at the Cedars-Sinai Medical Center and the Director of Myeloma Research for AMyC Consortium; Dr. Morie Gertz, Chairman, Internal Medicine, Hematology and the Transplant Center, at the Mayo Clinic in Rochester, Minnesota. The Support Group has also had Dr. Alberto Bessudo. Dr. Bessudo's areas of interest include tumor immunology, lymphoma and lung cancer. He is a staff member at Scripps Hospital in Encinitas and La Jolla.

For the past three years I asked my city council representative to declare a day in March to proclaim March is Multiple Myeloma Awareness Month. My council member made it happen. You can see the 2014, 2015 and 2016 videos of the city council meetings HERE.

For the 4th year in a row I submitted the forms to the “San Diego Business Journal” to participate in their annual HealthCare Champions Awards. For the fourth year in a row the San Diego Multiple Myeloma Support Group was recognized as a Finalist.

One last piece of advice...You need to start getting an annual physical...now.

On Dec. 24, 2017, an influential nationalistic member of the Danish parliament, Søren Espersen, said, "Wolves attack small children and old people. It's nuts to have them in Denmark...[translated from the Danish]."  Espersen is a member if the Danish People’s Party (DF).  In May, 2017, former Danish Minister of Finance (Secretary of the Treasury) and center-right conservative party member, Henning Dyremose, compared the policies of the DF to the Ku Klux Klan.  Dyremose later explained that he made the remark based on his childhood experiences while living in America.

Søren Espersen wants an open season on Danish wolves, as does a coalition of European nationalistic parties, on behalf of sports hunting, sheep and other livestock farmers, and to undermine the science of the European Union. For the sake of ecosystems stability and species conservation, the EU Habitats Directive gives wolves maximum protections, and at first only allowed the destruction of wolves verified to be a direct threat to humans. And it offers incentives for member states to pay compensation for livestock loss.  This occurred as a result of the 1979 Berne Convention on the Conservation of European Wildlife and Natural Habitats, which went into effect in 1982.  European countries that are not a member of the EU, such as Norway, do allow limited hunting of wolves, and there are efforts now to intensely expand culling wolves.  This Nordic fear of wolves makes no sense to senior science advisor, Susanne Hanssen, of the Norwegian Environment Agency.  Only one case of a fatal wolf attack is recorded in its entire 1200 year history.  Sweden has occasionally flouted the directive, with special hunting permits, with the EU responding with warnings.  The EU has also allowed a culling of 40 wolves in France, which polarized many.

To be fair, it isn’t only far-right, nationalists who want to hunt down wolves when perceived as a threat to livestock.  “If you can’t eliminate animals that attack, the situation won’t get any better,” said José Bové, a Green member of the European Parliament, who was formerly a sheep farmer in Aveyron in southern France. “All the efforts to protect shepherds, whether it’s fences or dogs or whatever — none of them have worked.” --Politico

An underlying motivation for Europe’s far-right, nationalistic parties to spread myths, such as Denmark’s Espersen with the big bad wolf fairy tale, is to destroy the European Union.  On Dec. 16, 2017, the leadership of these parties convened "For a Europe of Sovereign Nations” in Prague, Poland (already facing EU sanctions for putting the constitutional judiciary under significant executive government control).  Here they “attacked the EU for its migrant policies, accused its leaders of trying to create a super state run by Brussels and praised U.S. President Trump's approach to migration." 

That’s also true in the US: “The recent anti-wolf campaign represents an extraordinary cultural and political victory by the far-right wing in the Rocky Mountains. A loose coalition of some ranchers, hunters, and anti-government zealots demonized the gray wolves reintroduced to Montana and Idaho from Canada in the mid 1990s by the US Fish and Wildlife Service. They cast the animals as huge, aggressive, disease-ridden monsters bent on ravaging livestock, elk, deer, and even people.”

While it is true that there have been historical attacks by wolves on humans, such as 7,600 fatal attacks … documented from 1200–1920 in France, the truth of wolves’ danger is an entirely different story. Most of those attacks occurred wherever Europe was waging wars and directly threatening wolf existence.  In southern Asian countries, where spreading population densities have wiped out wilderness habitats, and where there is little scientific oversight and education to help people understand the wolf, there have been 200 reported deaths by wolves since 1950.  In that period, 3 fatalities have been documented in North America and eight in Europe and Russia combined. 

Putting all that in perspective, in 2013 alone 1.25 million people died as a result of vehicles… and in the 20th century alone, at least 200,000,000 (200 million) have perished in wars.  Additionally, “each year, dogs kill or injure many more people than wolves.  In 2012, the World Health Organization reported that, worldwide, over 55,000 people die annually of rabies, 99% of them infected by dog bites.  Children are especially at risk, since they are bitten by dogs 3-5 times more frequently than adults.” --(Overall & Love 2001 https://www.ncbi.nlm.nih.gov/pubmed/11417736?).  And in the UK alone, “Government officials and senior police officers were presented this week [Jan. 21, 2017] with findings indicating that around 15,000 sheep were killed by loose dogs in 2016, more than ten times higher than the number previously thought.”

That’s not to justify that it’s OK for wolves to kill people.  As with driver’s ed, people simply need to learn how to live with the presence of the wolf since it is scientifically considered an animal of human importancefor the sake of a planet with a functional biosphere capable of supporting civilization.

The first chapter of “wolf-ed” would be to sift fact from fiction: "News media are attracted to controversy, and wolf recovery, depredations, control programs, and most any other wolf-related topics seem irresistible.  The Yellowstone wolf reintroduction was intensively covered by sixty international media.  Popular information about wolves is often biased or inaccurate (Wolves and Human Communities). When wolf stories appear, the extreme views of opponents and supporters of wolves are often highlighted, further polarizing the issue.  The way the media covers wolves leaves the impression that they are more of a problem than other animals (Reintroducing the Gray Wolf to Central Idaho and Yellowstone National Park)"
 
Through a scientifically understood function, called
trophic cascade, large predators enrich the essential biodiversity and ecological stability of the planetary habitats which gives us oxygen and helps clean up our carbon footprints, give us our food,  etc. All the biology which supports civilization is enriched by the top-down effects of the wolf. 

The impact of shooting a wolf is quite exactly, emotionally and otherwise, the same as a home invasion where the burglar shoots a family member. It is devastating to the family, lo the community, and as a keystone species with the capacity for a trophic cascade, it devastates the entire ecosystem.

Returning to the Danish issue, over two centuries ago wolves had been hunted into extinction in this tiny country of 5.7 million.  Evidence indicates that they were “…functionally extinct in Denmark at least since 1750.”  In 2012, a dead wolf was found in southern Denmark and soon after, someone spotted the first wild wolf since 1813.  Later DNA analysis of a female’s feces indicated that she had traveled over 550 kilometers (341 miles), from a wilderness near Berlin.  The working theory for  their return is that they had been “…young wolves rejected by their families who [were] looking for new hunting grounds," according to Peter Sunde, senior scientist at the Aarhus University Institute for Bioscience. 

Video of Danish wolf pair


They have now formed at least one pack with young, and perhaps two, due to suspected attacks on sheep in other wilderness areas.  Danish sheep farmers, having no experience with a large predator, are understandably concerned,.  Since 2012, farmers have received compensations of over 50,000 kroner ($7,000.00) for confirmed losses. 


Culling wolves as a preventive measure may only be a perception.

"As human populations continue to grow and we expand further into wilderness areas, we will have to find better ways to coexist with wildlife: particularly those that threaten our livelihoods or even our lives." BBC Earth: When you start killing wolves, something odd happens

Explaining a 2014 study, Guillaume Chapron of the Swedish University of Agricultural Sciences feels that the problem, and therefore solution, lies with us. "Wolves are quite adaptable to humans," he says. "The question is whether humans are adaptable to wolves."

Whilst killing an animal perceived as a threat may seem like an easy solution, it may not prove the most effective in the long-term. In fact, [the study] suggested that wolf culls can backfire in the short term by increasing the frequency of wolves killing livestock.

"Our results undermine the justifications used to kill wildlife," says [coauthor of the study, Adrian Treves of the University of Wisconsin-Madison. "Therefore, more broadly, predator control as a government policy needs to be scrutinized."

***

The preponderance of the scientific evidence shatters the myth of the big bad wolf.  Arguably the most successful to adapt (in terms of distribution) of all mammals next to man (woman), wolves are integral to the evolution and stability of a great many habitats on the planet, from the arctic wolf of the far north to the near-solitary maned wolf of Argentina… and the highlands Himalayan wolf to the hot deserts Arabian wolf, just to name a few.  They provide a huge service to every ecosystem within which they interact, and not only by scavenging dead animals and directly controlling fauna, which are diseased or otherwise devastate habitats with overpopulation, from small rodents to the ungulates, such as deer, elk and the bighorn.  The beneficial impact of this large intelligent predator actually trickles down (please excuse this economically nasty word) to the very fundamental fabric of any habitat, increasing biodiversity, through that ecological function described above, the trophic cascade.

When wolves were reintroduced to Yellowstone in 1995, this is what happened.  Its physical geography actually changed, beneficially.


There is no doubt that wolf attacks on humans have occurred in Europe, although there are few verified reports of attacks past the beginning of the twentieth century. Today there is considered to be very little risk to humans from wolves in Europe, yet public attitudes remain negative. Research shows that wolf attacks are perceived to be more common than they actually are, and fear of wolves is still a significant factor in opposition to wolf recovery in many areas.

This fear can be effectively addressed by good education, through lectures, talks, information centres and publications about wolves. It is important that education is carried out in all sections of society, and is honest about the risks posed by wolves. Denying that wolves are potentially dangerous can be counter-productive, as anti-wolf campaigners will accuse conservationists of deliberately misleading the public. Better understanding of the risks reduces fear. Education should include discouraging the public from feeding wolves or approaching too closely, as most incidents where people have been injured by wolves in the last few years have involved animals that had become habituated to being around people and associating them with food.”--The Wolves and Human Foundation

And let us not forget that man’s best friend was a wolf in a time long forgotten except through the DNA evidence